(05-01-2018, 03:52 AM)HandsomeRob86 Wrote:

(04-30-2018, 11:29 PM)americus 2.0 Wrote: Middle age....there is not an appropriate emoji for that! Lol. 

Thank you though. 

It's tough. The crapfest gets even more depressing when doctors don't have the slightest idea how to treat your illness/disease so they try to blow you off or act like you're an idiot. There are no specialists for this in my state and most GYN's just don't want to have anything to do with it because they just don't know anything about it.

Really? OBGYNs won't treat it? Maybe you should come to the US.

On the more supportive side tho, my mother had endometriosis for years before she finally figured out her 'bad periods' weren't normal. She had a total hysterectomy and this resolved it for her. If they know where the tissue is, I think surgery can be a good option. I am sorry this happened to you. As bunny says *hugs*

GYN's treat symptoms, specialists actually do the heavy lifting. I'm an unusual case because I never had it until AFTER my hysterectomy, which I had due to fibroids, and I believe it's possible some tissue was left in there and started this whole thing. There was no indication of any endo at all during that surgery and nothing in the pathology report afterwards. I've never had any doctor tell me I had this and I never had any signs or symptoms. 

My current doctor finds this extremely hard to believe and these folks make you feel like you're not being completely truthful because it doesn't make sense. It's frustrating. I've known myself for 46 years and I know all there is to know about my history- I was there!! These doctors have known me since December. 

I have found an online resoource that I believe is going to be helpful with information on how to navigate all of this with finding a specialist (closest one to me is in TN), how to deal with my insurance company and their coverage and so on. Now I just have to try to learn as much as I can and try to stay sane when the hormone fluctuations send my mental state into a nosedive. Not fun when you already live with depression.

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